Tag: Home Monitoring

  • Daily Journal #14: Better Numbers, But I’m Still Watching

    Daily Journal #14: Better Numbers, But I’m Still Watching

    My morning health checks were much better today than they were the previous two days.

    And I’m definitely happy to see that.

    I dropped a little over three pounds since yesterday, bringing my weight back down to about where it should be. Considering the weight gain, increased body water and swelling I was seeing over the last couple of days, it certainly looks like I had been retaining fluid.

    My blood pressure was also lower this morning at 114/68 with a pulse of 57.

    That’s lower than yesterday, but not something I’m particularly concerned about based on how I’m feeling. It’s simply another number I’m going to continue watching.

    My feet also look almost normal again.

    I think there’s still a little swelling because they feel somewhat stiff, but there’s a noticeable improvement. Yesterday, they actually hurt.

    Today is definitely a better day.

    This Is Why I Do Morning Health Checks

    Days like today reinforce why I’ve become so committed to doing these checks every morning.

    It can seem like a hassle.

    Get on the scale.

    Check my blood pressure and pulse.

    Look at the body-water reading from my BIA scale.

    Check my feet and legs for swelling.

    Pay attention to how I’m feeling.

    Record everything.

    Then do it all over again tomorrow.

    But there’s a reason I do it.

    I’m trying to catch changes early rather than waiting until I’m sick enough to end up back in the hospital.

    Yesterday, several things were moving in the wrong direction at the same time.

    My weight was up for the second consecutive day. My BIA scale showed increased body water. My blood pressure was a little higher, and I could see swelling in my feet.

    Today, most of those things are moving back toward normal.

    That’s exactly the kind of trend I’m looking for.

    A Good Day Doesn’t Mean I Stop Monitoring

    It would be easy to look at today’s three-pound drop and think:

    Great. Problem solved.

    Not quite.

    My feet still appear to be slightly swollen.

    And more importantly, I still don’t know exactly what caused the fluid retention in the first place.

    Was it too much sodium?

    Was there more sodium in the shrimp I ate than I realized?

    Did the fruit I ate add enough additional fluid to make a difference?

    Was it a combination of several small things?

    Or is something happening with my heart that has absolutely nothing to do with anything I ate or drank?

    I don’t know.

    And that’s exactly why I can’t stop monitoring just because today’s numbers look better.

    Sometimes There Isn’t an Obvious Answer

    I think that’s one of the frustrating parts of managing a chronic illness.

    I want there to be a simple cause and effect.

    I did X, so Y happened.

    Unfortunately, the body doesn’t always cooperate with that logic.

    I can retrace everything I ate.

    I can look at how much I drank.

    I can check nutrition labels.

    I can look at my activity.

    And sometimes I still won’t have a definite answer.

    What I can do is continue collecting information.

    If something starts changing again tomorrow, I’ll know.

    If my weight continues downward and the swelling disappears, I’ll know that too.

    The individual number matters.

    The trend matters even more.

    The Goal Is Staying Out of the Hospital

    I’ve spent enough time in hospitals.

    If taking a few minutes every morning to check my weight, blood pressure, pulse, body water and swelling gives me a better chance of catching a problem early, those few minutes are absolutely worth it.

    Are morning health checks sometimes annoying?

    Yep.

    Would I occasionally rather just grab a cup of coffee and forget about all of it?

    Absolutely.

    But I also know the alternative.

    A few minutes checking numbers at home sounds a whole lot better than spending several days checking the ceiling from a hospital bed.

    So tomorrow morning I’ll do it all again.

    Even though today’s numbers were better.

    Especially because today’s numbers were better.

    I want to know they stay that way.

    ❤️ Greg’s Take

    Yesterday was a little concerning.

    Today was encouraging.

    But neither day tells the entire story by itself.

    That’s what I’m learning from tracking my health every morning.

    One bad number doesn’t necessarily mean disaster.

    And one good number doesn’t necessarily mean everything is fixed.

    It’s the pattern I’m watching.

    Today, I’m more comfortable knowing my weight has come back down, my feet look considerably better and most of the signs I was watching are moving in the right direction.

    I’ll take that win.

    But tomorrow morning, I’ll still step on that scale.

    I’ll still check my blood pressure.

    I’ll still look at my feet.

    And I’ll still write everything down.

    Because as much of a pain as this routine can sometimes be, I know which is worse:

    Five minutes of morning health checks or another few days in the hospital.

    That’s an easy choice.

  • Daily Journal #13: The Scale Is Heading the Wrong Way

    Daily Journal #13: The Scale Is Heading the Wrong Way

    Well, my morning health checks are continuing to move in the wrong direction.

    I gained more than a pound again this morning. That’s now two days in a row with a gain of more than a pound.

    This time, there were some other signs along with it.

    My BIA scale showed an increase in body water. My blood pressure was slightly elevated, and when I looked at my feet, I could see some mild swelling.

    One number by itself might not concern me much.

    Several things pointing in the same direction get my attention.

    It looks like I’m retaining fluid.

    First Things First

    The first thing I did was follow the plan my cardiologist has given me and take my prescribed diuretic.

    Anyone who has dealt with heart failure and diuretics probably knows what that means.

    A good portion of today’s schedule will revolve around knowing exactly where the nearest bathroom is.

    Not particularly exciting, but that’s part of managing this.

    Now I watch what happens.

    Does the swelling decrease?

    Does my weight start moving back down?

    Does the extra water come off?

    Tomorrow morning’s numbers will be especially interesting.

    Now Comes the Detective Work

    The next thing I do when this happens is start retracing my steps.

    What changed?

    Did I drink too much?

    I don’t think so. I didn’t have any extra water yesterday. I did have a couple of peaches, which obviously contain water, but I don’t think that alone explains what I’m seeing.

    Then I started thinking about dinner from a couple of nights ago.

    The steak and shrimp rice bowls.

    They were one of my favorite meals, and I’ll admit it:

    I overindulged.

    The meal itself wasn’t necessarily the problem. We make it at home, so I have a pretty good idea of what’s going into the steak, rice, vegetables and seasonings.

    The question mark is the shrimp.

    Shrimp Can Be Tricky

    Shrimp naturally contains some sodium, but packaged shrimp can contain considerably more depending on how it was processed.

    Unfortunately, we already threw away the package.

    So I can’t go back and check the label.

    That’s frustrating because I’d really like to know exactly what I ate.

    Maybe we bought a different shrimp than usual. Maybe it contained more sodium from processing or packaging. Maybe the larger portion I ate was enough to push me over the edge.

    Or maybe it wasn’t the shrimp at all.

    I don’t know.

    That’s important for me to say because it’s very easy to see the scale move and immediately blame the last suspicious thing I ate.

    All I can do is look at the information I have and try to identify the most likely explanation.

    Maybe Fresh Shrimp Is the Better Answer

    One thing I’m considering going forward is buying more of our shrimp fresh from a seafood market.

    Living in Southwest Florida, we’re certainly not lacking seafood markets.

    That would give me another option when I’m trying to avoid some of the sodium that can be added during processing.

    But even then, I’ll still need to ask questions and pay attention to what I’m buying. “Fresh” doesn’t automatically tell me everything about how seafood was handled before it reached the counter.

    That’s one lesson I keep learning:

    Never assume. Ask. Read. Check.

    Sodium Doesn’t Always Give Me an Immediate Warning

    This is one of the frustrating parts of tracking everything.

    I don’t necessarily eat something salty at dinner and wake up the next morning several pounds heavier.

    Sometimes the pattern takes longer to become apparent.

    That’s why looking at trends has become more useful to me than reacting to one isolated number.

    Yesterday I was up.

    Today I’m up again.

    Now I’m also seeing increased body water on the scale and some swelling in my feet.

    That’s a trend worth paying attention to.

    I’m Watching — Not Panicking

    I’m still nowhere near the point where I think I need to head to the hospital.

    But I’m also not ignoring what’s happening.

    I’ve followed the medication plan my cardiologist gave me, and now I’ll monitor things more closely.

    That’s really what all of this daily tracking is about.

    It’s not about panicking every time the scale moves.

    It’s about noticing when several things start changing together and knowing when I need to pay closer attention.

    Hopefully, the diuretic does what it’s supposed to do today.

    Hopefully, the swelling improves.

    And hopefully tomorrow morning I step on the scale and finally see that number traveling in the other direction.

    ❤️ Greg’s Take

    This is exactly why I do morning health checks every day.

    Yesterday’s weight gain was something to watch.

    Today’s second consecutive gain, increased body water, slightly swollen feet and higher blood pressure gave me more information.

    Now I can respond according to the plan my cardiologist has already given me instead of waiting until things get significantly worse.

    I may never know whether those delicious steak and shrimp rice bowls were responsible.

    But I learned something anyway.

    Next time, don’t throw away the shrimp package until after I’ve survived the meal.

    And maybe don’t eat quite so much of it either.

    That second lesson may be the harder one.

    Medical Disclaimer: This journal reflects my personal experience living with chronic illness and how I manage my health based on guidance from my own healthcare team. It is not medical advice. Medications, including diuretics, should only be taken as prescribed by your healthcare provider. If you notice changes in your weight, swelling, blood pressure, breathing, or other symptoms, contact your healthcare provider for guidance. Seek immediate medical attention for symptoms that may be an emergency.

  • Daily Journal #12: Up a Pound and Keeping an Eye on It

    Daily Journal #12: Up a Pound and Keeping an Eye on It

    I woke up around 2:30 this morning. I’m still having trouble sleeping, but according to my Apple Watch, I managed 4 hours and 51 minutes.

    Is that great? No.

    But it’s better than no sleep, so I’ll take that win.

    Something Different on the Scale

    While doing my morning health checks, I noticed that my weight was up 1.1 pounds from yesterday.

    That’s a little unusual for me, so naturally I started trying to figure out why.

    My BIA scale actually showed my body-water percentage was about half a percent lower than yesterday. I’m also not noticing any swelling in my feet or legs.

    Then I started going through the other possibilities.

    The shirt I was wearing this morning was made from a heavier material than the one I wore yesterday. Could that account for some of the difference? Sure. But I seriously doubt my shirt weighs an extra pound.

    I’m not constipated, so that probably isn’t contributing much either.

    Then there’s dinner.

    A couple of nights ago, we made those steak and shrimp rice bowls I mentioned in my last journal entry. They were so good that I ate more than I normally do. The shrimp we used also had some added sodium from processing.

    Could the extra food, sodium and possibly a little fluid retention be contributing to what I’m seeing on the scale?

    Maybe.

    The truth is, I don’t know yet.

    And that’s where I’ve learned not to overreact to a single number.

    Watch the Trend

    A 1.1-pound increase by itself isn’t setting off alarm bells for me. It’s simply something I’m going to pay attention to.

    That’s one of the reasons I track this information every morning. One number gives me a snapshot. Several days of numbers give me a trend.

    I’ll keep watching my weight, body-water reading, blood pressure and how I’m feeling over the next few days.

    If the weight keeps climbing or I notice other changes, that’s information I can act on and share with my doctors.

    For now, I’m monitoring it.

    The last thing I want is another trip to the hospital.

    Some Changes Around the Website

    I also spent some time working on He’s Knocking on Your Door yesterday.

    I’ve added featured content to the front page, so now you can see highlights from the Daily Journal, Living With It articles, and Helpful Finds without having to click around the site looking for something new.

    I also decided to start adding featured images to these Daily Journal entries.

    They were getting a little boring without something visual. Besides, some of the images are giving me an opportunity to have a little fun with what’s happening that day.

    Yesterday’s Windex image might be difficult to top.

    Otherwise, a Pretty Boring Day

    Other than that, there isn’t a whole lot to report.

    My hip still hurts—a lot.

    One of the frustrating parts is simply trying to find a comfortable position. Sitting in a regular chair for any length of time can be difficult, which limits how much time I can spend working at a computer.

    I can accomplish quite a bit from my phone or iPad, but there’s only so much I want to type or design on a smaller screen.

    So today may be another relatively quiet day.

    A little website work.

    Keep an eye on the scale.

    Deal with the hip.

    And hopefully get a little more sleep tonight.

    Not every day needs to be exciting. Sometimes a boring day is perfectly fine.

  • Daily Journal #11: A Good Meal, Better Numbers, and… Windex?

    Daily Journal #11: A Good Meal, Better Numbers, and… Windex?

    My morning health checks were good today, which honestly surprised me a little.

    I ate more than I normally do yesterday.

    But dinner was really good.

    We made one of my favorite meals: steak and shrimp rice bowls. I probably could have eaten the entire pan if I had let myself.

    I’ll be posting my version of the recipe soon because it’s another meal we’ve been able to adapt to fit my low-sodium lifestyle.

    The steak, seasoning, rice, and vegetables are all pretty easy for me to control.

    The shrimp is where I have to pay attention.

    Not All Shrimp Is the Same

    One thing I’ve learned since watching sodium so closely is that shrimp can be tricky.

    Shrimp naturally contains sodium, but some frozen shrimp can have additional sodium from the way it is processed or packaged. That means I’ve learned to check the nutrition label instead of assuming one bag of shrimp is the same as another.

    This time, I bought shrimp from Sam’s Club.

    The label showed 280 mg of sodium per 4-ounce serving, which was about six shrimp.

    Shrimp already contains naturally occurring sodium, so not all of that 280 mg is necessarily coming from processing. That’s another reason I’ve learned that the nutrition label matters more to me than trying to estimate exactly where every milligram came from.

    It’s something I’ll talk more about when I post the steak and shrimp rice bowl recipe.

    And yes, I promise I’ll try not to eat the whole pan next time.

    The Hip Is a Little Better

    My leg and hip are feeling a little better today.

    They’re certainly not back to normal, but I’ll take any improvement I can get.

    After the last few days of pretty intense pain, I’m going to make today another take-it-easy day and hopefully let things continue to settle down.

    Sometimes knowing when not to push myself is just as important as getting up and moving.

    And Then There’s the Windex…

    The bug bites are also feeling much better.

    And this is where today’s journal gets a little strange.

    We stopped at CVS and asked the pharmacist what I could do about the itching.

    The suggestion?

    Put some Windex on a paper towel and dab it on the bites.

    Yep.

    Windex.

    My first thought was pretty much:

    “You’ve got to be kidding me.”

    I honestly wondered whether everyone behind the pharmacy counter was laughing their butts off after we walked away.

    But I tried it.

    And I’ll be damned…

    It helped.

    I’m certainly not turning He’s Knocking on Your Door into a Windex medical-advice website—and I’m not recommending anyone else try it—but I have to admit that my itching improved.

    Sometimes life with chronic illness is about tracking weight, blood pressure, sodium, medications, and symptoms.

    And apparently, sometimes it’s about leaving CVS wondering how Windex just became part of the day’s story.

    ❤️ Today’s Reflection

    Good health numbers this morning.

    A little less hip pain.

    Bug bites that finally aren’t driving me crazy.

    And a fantastic dinner last night that reminded me that eating low sodium doesn’t mean giving up good food.

    I’ll take those as wins.

    Today I’m going to take it easy, enjoy feeling a little better, and start thinking about getting that steak and shrimp rice bowl recipe onto the site.

    One day at a time.

  • My Health Tracker

    My Health Tracker

    The Five Minutes Every Morning That Help Me Stay Ahead of My CHF

    Living with congestive heart failure has taught me something important.

    Your body is constantly giving you information.

    The question is whether you’re paying attention.

    Every morning, before I drink my morning water or begin my day, I spend about five minutes checking in with my body.

    To some people, it probably looks like I’m filling out a simple spreadsheet.

    To me, it’s much more than that.

    It’s an early warning system.

    Over time, I’ve learned that it’s much easier to recognize a problem before it becomes serious than it is to recover after the problem has already happened.

    That’s why I track my health every single morning.

    Not because my doctors told me to.

    Because it helps me understand my own body.

    One of the most important lessons I’ve learned while living with chronic illness is this:

    Nobody will ever know your body as well as you do.

    The more information I collect, the better conversations I have with my doctors, and the more confident I feel when something doesn’t seem right.


    Download My Daily Health Tracker

    If you’d like to use the same spreadsheet I use every morning, I’ve made an example version available for you to download.

    📥 Download the Daily Health Tracker (Excel)

    Feel free to customize it for your own health conditions. What I track may not be exactly what you need, but hopefully it gives you a good starting point for building your own daily routine.


    What I Track Every Morning

    Below is a screenshot of the actual spreadsheet I use every day.

    Screenshot of the example of the health tracking Excel Sheet that I use

    It isn’t complicated.

    In fact, that’s intentional.

    The easier something is to use, the more likely you’ll continue using it.

    Each column serves a purpose, and together they give me a quick snapshot of how my body is doing each morning.


    📅 Date

    The first column simply records the date.

    It sounds obvious, but dates become incredibly important when you’re looking for trends over several days, weeks, or even months.

    Sometimes a doctor will ask,

    “When did this start?”

    Instead of guessing, I simply look back at my spreadsheet.


    🕒 Time

    I try to record my information at approximately the same time every morning.

    For me, that’s usually around 5:00 AM, after using the restroom but before eating breakfast.

    Keeping everything consistent makes it easier to compare one day to the next.


    ⚖️ Weight

    Weight is probably the most important number I track.

    For someone living with congestive heart failure, sudden weight gain often isn’t body fat.

    It’s fluid.

    That’s why I weigh myself every morning under the same conditions. After using the washroom and wearing the same type of clothes.

    A sudden increase can be one of the earliest signs that my body is retaining fluid.


    📈 Daily Weight Change

    The next column calculates the difference between today’s weight and yesterday’s.

    I’m watching for one thing in particular.

    Have I gained 2–3 pounds overnight or about 5 pounds in a week?

    Those numbers can be an early warning sign of fluid retention and may indicate that it’s time to contact my healthcare provider.

    Instead of trying to remember yesterday’s weight, Excel does the math for me automatically.


    💧 Water Percentage

    My scale also estimates my body water percentage.

    While I know this isn’t a perfect medical measurement, I still find it useful.

    The spreadsheet uses that percentage to estimate approximately how many pounds of my body weight are water.

    Is it exact?

    No.

    But it’s another piece of information I can use.

    If you have a pacemaker, ICD or an implantable device, please see the warning at the bottom of the page on BIA scales.


    💧 Water Weight Change

    This is another calculated field.

    It compares today’s estimated water weight to yesterday’s.

    Again, I don’t make medical decisions based on this number alone.

    Instead, I use it as another indicator alongside my weight, blood pressure, and how I’m feeling that day.

    Sometimes several small clues together tell a much bigger story.


    ❤️ Blood Pressure

    Every morning I record my blood pressure.

    If I’m feeling unusually tired, dizzy, or lightheaded, this number often helps explain why.

    Looking back over weeks or months also helps me recognize trends that a single reading might not reveal.


    ❤️ Pulse

    Since I live with persistent atrial fibrillation, my pulse is another number I pay close attention to.

    Knowing what’s normal for me makes it easier to recognize when something feels different.


    🍬 Blood Glucose

    Because I also have diabetes, I record my morning glucose reading.

    Like everything else in this spreadsheet, I’m more interested in trends than any single day’s number.

    Consistently improving numbers are much more meaningful than one good morning.


    📝 Notes

    This might actually be the most valuable column in the entire spreadsheet.

    Numbers only tell part of the story.

    The notes tell the rest.

    This is where I write things like:

    • Poor night’s sleep
    • Feeling unusually tired
    • Increased hip pain
    • Didn’t take Torsemide today
    • Swelling in my ankles
    • Shortness of breath
    • Walked farther than usual

    Months later, these notes often explain why certain numbers changed.

    They’ve become incredibly valuable when preparing for doctor appointments.


    👨‍⚕️ Doctor Follow-Up

    The last column is one I added for myself.

    Whenever one of my doctors changes a medication or gives me a new instruction, I write it down.

    For example:

    • Stop taking Torsemide until next appointment.
    • Reduce blood pressure medication.
    • Repeat blood work in two weeks.
    • Schedule MRI.

    When you’re seeing multiple specialists, it’s easy to forget exactly when something changed.

    Writing it down removes the guesswork.


    Why I Spend Five Minutes Every Morning

    Some people may look at this spreadsheet and think it seems like a lot of work.

    Honestly…

    It isn’t.

    It takes me about five minutes every morning.

    Those five minutes give me peace of mind for the rest of the day.

    More importantly, they help me become an active participant in my own healthcare instead of simply reacting when something goes wrong.

    One of the biggest lessons I’ve learned is that trends are much more important than individual numbers.

    One slightly elevated blood pressure reading usually isn’t a big deal.

    Five straight days of gradual weight gain?

    That gets my attention.

    Having this information also makes my doctor appointments much more productive.

    Instead of trying to remember how I’ve been feeling over the past month, I can look back at actual data.

    It makes our conversations more meaningful and helps my healthcare team see the bigger picture.


    Could This Help You?

    I’m not suggesting everyone should track the exact same information I do.

    Your health conditions may be completely different from mine.

    But I do believe that anyone living with a chronic illness can benefit from keeping some type of health journal.

    Whether it’s on paper…

    In Excel…

    Or through an app…

    The important thing is consistency.

    Your future self—and your doctors—will appreciate having the information.


    Takeaways

    One of the biggest things chronic illness has taught me is that good healthcare doesn’t only happen in the doctor’s office.

    It happens every morning when I choose to pay attention to my own body.

    This little spreadsheet has become much more than a collection of numbers.

    It’s helped me recognize patterns before they became problems.

    It’s helped me prepare for doctor appointments.

    It’s helped me ask better questions.

    And most importantly…

    It’s helped me become my own best advocate.

    For something that only takes about five minutes each morning…

    I’d say that’s time well spent.

    ⚠️ A Note About Pacemakers, ICDs, and Implantable Devices

    If you have a pacemaker, ICD (implantable cardioverter-defibrillator), CRT device, or other implanted cardiac device, some consumer smart scales that measure body composition use a small electrical current (bioelectrical impedance analysis, or BIA) to estimate body fat, muscle mass, and body water.

    Before using these features, follow the manufacturer’s safety instructions for your specific scale and ask your cardiologist or electrophysiologist if they’re appropriate for you.

    If your healthcare team recommends avoiding these measurements, you can still use this tracker by recording your weight and the other health information without using the body composition features.

    Medical Disclaimer

    This spreadsheet is intended as a personal tracking tool only. It should never replace the advice of your healthcare providers or be used to make medication changes without their guidance.

    The information in this article reflects my personal experience living with chronic illnesses, including congestive heart failure, atrial fibrillation, chronic kidney disease, and diabetes. It is shared for educational purposes only and is not medical advice.

    Always follow the recommendations of your own healthcare providers regarding medications, diet, fluid restrictions, and health monitoring. If you notice sudden weight gain, worsening shortness of breath, chest pain, fainting, or any other concerning symptoms, contact your healthcare provider or seek emergency medical care as appropriate.

    Suggested External Links

  • Daily Journal #9: A Small Victory

    Some days your body simply tells you it’s had enough.

    Yesterday was one of those days.

    After only getting a few hours of sleep the night before because of my ongoing battle with insomnia, I was completely exhausted. Around 6:30 in the evening, I laid down in bed to watch a little television.

    The next thing I knew, I had slept for more than eight hours.

    I honestly can’t remember the last time I slept that long.

    Lately, a “good night’s sleep” has felt like something other people get to enjoy. Eight uninterrupted hours has become so rare that waking up this morning actually felt different. I felt refreshed. It’s amazing how something most people take for granted can feel like such a gift when you’ve been struggling with insomnia.

    My morning health check was encouraging. Everything looked good, and that’s always a reassuring way to start the day.

    Unfortunately, my right hip continues to remind me that not everything is moving in the right direction.

    The pain has been intense since yesterday afternoon. While medication would probably take the edge off, it comes with another problem—constipation. Like so many things that come with chronic illness, it often feels like solving one problem creates another. For now, I’m going to try and manage the pain without taking anything.

    At least today I can get comfortable in my recliner. Yesterday, even that seemed impossible.

    Living with chronic illness has taught me that progress isn’t always measured in big milestones.

    Sometimes it’s measured by a good night’s sleep.

    Sometimes it’s simply finding a comfortable place to sit.

    And sometimes, it’s waking up feeling just a little more refreshed than you did the day before.

    Today wasn’t perfect.

    But today was better.

    I’ll gladly take that as a small victory.

  • Daily Journal #8: Goods and Bads

    This morning started on a positive note. My daily health checks all looked good, and by later this morning I was down a few more ounces. It’s not a huge change, but every ounce is another step toward my weight-loss goal, and I’ll take every victory I can get.

    Unfortunately, the rest of the day has been much more difficult.

    Since yesterday afternoon, I’ve been dealing with severe pain in my right hip. The pain shoots all the way down my right thigh, making it nearly impossible to get comfortable. Even my recliner—usually the one place where I can find some relief—hasn’t helped. No matter how I sit or shift, the pain just won’t let up.

    I finally gave up and went to bed early last night, hoping sleep would help. Instead, I woke up at 12:30 a.m. and never made it back to sleep. Another night of insomnia.

    The combination of chronic pain and sleepless nights is exhausting. When your body hurts and your mind won’t let you rest, it wears on you physically and emotionally. You begin to wonder how much longer you can keep going like this.

    I’m hoping this stretch of insomnia ends soon because it’s becoming just as draining as the health issues themselves. For now, I’ll focus on the one positive from today—the scale moved in the right direction. Sometimes that’s enough to remind me that even when everything else feels like it’s working against me, there is still progress being made.

  • My Morning Health Check: The Numbers I Track Every Day

    My Morning Health Check: The Numbers I Track Every Day

    Living with heart failure and kidney disease means that every morning begins with a small collection of measurements. The process can be tedious, but it has become an important part of understanding what my body is doing and recognizing changes before they become larger problems.

    This is the routine developed for me with guidance from my medical team. It is not medical advice or a monitoring plan for everyone. Your doctors should determine which measurements and warning signs matter for you.

    Starting with a Consistent Weigh-In

    My routine begins after I use the bathroom and before I eat or drink anything. I try to wear approximately the same amount of clothing each time and always use the same scale in the same location.

    These details may sound overly particular, but consistency makes it easier to tell whether a change on the scale is likely real or simply caused by different clothing, food, fluids, or the time of day.

    The American Heart Association recommends weighing yourself each morning after urinating, before breakfast, without shoes, and while wearing the same type of clothing.

    I record my weight and compare it with both the previous day and the preceding week. The general warning levels I watch for are:

    • A gain of approximately 2–3 pounds in one day
    • A gain of 5 pounds or more in one week
    • Any different threshold my medical team has instructed me to follow

    A sudden increase does not automatically prove that I am retaining fluid, but it is a reason to look more closely at my other numbers and symptoms. The American Heart Association explains that rapid weight gain can be an early sign of fluid retention in people with heart failure.

    Tracking Body-Water Percentage

    My scale also estimates my body-water percentage. I convert that percentage into pounds using this formula:

    Body weight × body-water percentage = estimated pounds of body water

    For example, if someone weighs 200 pounds and the scale reports 50% body water:

    200 × 0.50 = 100 pounds of estimated body water

    I do not treat this number as a precise measurement or as proof that I am retaining fluid. Consumer body-composition scales can be affected by hydration, food, skin contact, time of day, and other factors. I use it as another trend to compare with my previous readings.

    If my weight and estimated body water rise together—especially if I also notice swelling, shortness of breath, or other changes—that gives me more information to discuss with my medical team.

    An Important Scale-Safety Warning

    Body-composition scales use bioelectrical impedance analysis, or BIA. They send a very small electrical signal through the body to estimate measurements such as body fat, muscle mass, and body water.

    People with pacemakers or certain other implanted electronic medical devices should not use impedance-based features unless the device manufacturer and their medical team have confirmed that it is safe. Some compatible scales provide a weight-only or pacemaker-safety mode that disables these features.

    I have a loop recorder and an artificial heart valve rather than a pacemaker. Even so, I checked with my cardiologist before using this type of scale. Anyone with an implanted medical device should check the instructions for the exact scale and speak with a qualified medical professional before using its body-composition functions. Withings explains how BIA and its weight-only safety mode work here.

    Blood Pressure and Heart Rate

    Next, I record my blood pressure and heart rate.

    For me, a higher-than-usual blood pressure reading can be one clue that my heart is working harder or that something has changed. A lower-than-usual reading—especially when accompanied by dizziness, weakness, or lightheadedness—can raise questions about dehydration, medication effects, or whether too much fluid has been removed.

    A single reading does not tell the complete story. I look at the measurement alongside my weight, symptoms, medication use, and recent trends. I do not change my diuretics or other medications based only on my spreadsheet unless my medical team has given me specific instructions to do so.

    Glucose

    I also record my glucose. Tracking it alongside my other measurements gives me a more complete daily picture and helps me notice patterns that might otherwise be missed.

    Blood glucose can be affected by food, medication, illness, stress, activity, and sleep, so the context surrounding the number matters. As with my other readings, I follow the targets and reporting instructions given to me by my health care team.

    Recording Everything in One Place

    I currently track all these measurements in an Excel workbook:

    • Weight
    • Daily and weekly weight changes
    • Body-water percentage
    • Estimated pounds of body water
    • Blood pressure
    • Heart rate
    • Glucose
    • Symptoms and other notes

    Google Sheets would work well for the same purpose. The most important part is keeping the information organized and easy to review over time.

    My cardiologist and nephrologist review these records regularly. Having the information collected in one place makes it easier for them to see patterns and understand what has been happening between appointments.

    What I Want to Build Next

    My next goal is to create a dashboard within the spreadsheet. I would like it to use green, yellow, and red indicators:

    • Green: Measurements are within my usual range
    • Yellow: I am approaching a threshold and should pay closer attention
    • Red: A measurement has reached a limit established by my medical team and may require action

    The thresholds will need to be personalized. A number that is normal for one person may not be normal for someone else, particularly when heart disease, kidney disease, diabetes, and medications are involved.

    Eventually, I would like to turn this system into an app that makes daily tracking easier. When I finish the spreadsheet dashboard—and if I develop the app—I will share what I learn.

    Tedious, but Worth Doing

    I will be honest: completing this routine every morning can feel repetitive. There are days when I would rather step off the scale, forget the numbers, and get on with my morning.

    However, these measurements give me a clearer picture of my health. One isolated number may not mean very much, but changes across several days can reveal a trend worth paying attention to.

    This is what I personally do to monitor my health each day. It does not replace professional medical care, and I follow the thresholds and instructions established by my cardiologist and nephrologist. Anyone who wants to begin a similar routine should first ask their medical team what to measure, how often to measure it, and which changes should prompt a phone call or urgent care.

  • Daily Journal #7: A New Weight-Loss Goal

    A New Weight-Loss Goal

    I woke up and completed my daily health checks. Everything looked good, and my weight was down slightly compared with the past few days.

    My weight loss seems to have reached a plateau, so I’ve set a new goal: 225 pounds by April 1, 2027. I weighed 255.7 pounds this morning, which leaves me 30.7 pounds to go. Breaking through this plateau may be difficult, but I believe the goal is achievable.

    When I had my stroke in 2020, I weighed a little over 400 pounds and was in the worst physical condition of my life. The stroke was a frightening wake-up call.

    When I compare where I was then with where I am today, the progress is incredible. I still have work ahead of me, but I’m proud of how far I’ve come—and I’m going to keep moving forward, one pound and one day at a time.

  • What Is HFpEF?

    What Is HFpEF?

    How Can I Have Heart Failure If My Heart Is Pumping Normally?

    That was one of my first questions after learning that I had heart failure with preserved ejection fraction, commonly called HFpEF.

    My echocardiogram showed that my ejection fraction was in the normal range. If my heart was still pumping normally, how could I possibly have heart failure?

    The answer is that ejection fraction tells only part of the story. HFpEF is not primarily a problem with how forcefully the heart squeezes. It is a problem with how well the heart relaxes and fills between beats.

    It is also important to distinguish a normal ejection fraction from a normal heartbeat. A person can have a preserved ejection fraction while also having an abnormal rhythm, valve disease, conduction problems, or other cardiac conditions, like me.

    What Does “Preserved Ejection Fraction” Mean?

    Ejection fraction measures the percentage of blood that the left ventricle pumps out with each contraction. In HFpEF, that percentage is generally 50% or higher.

    However, a normal percentage does not necessarily mean that the heart is moving a normal total amount of blood.

    Imagine a flexible balloon that expands easily and fills completely. Now imagine a thick, stiff balloon that can hold only a smaller amount. Both balloons might empty the same percentage of their contents, but the stiff balloon starts with less inside it.

    Something similar can happen with HFpEF. The heart may eject a normal percentage of the blood inside the ventricle, but because the ventricle cannot relax and fill properly, the total amount of blood pumped may still be insufficient—especially during physical activity.

    The National Heart, Lung, and Blood Institute describes HFpEF as a condition in which the left side of the heart becomes too stiff to relax fully between beats. That stiffness prevents it from filling with enough blood to meet the body’s needs efficiently.

    What Is a “Stiff Heart”?

    The heart works in two main phases:

    • During systole, the heart contracts and pushes blood forward.
    • During diastole, the heart relaxes so its chambers can refill.

    With HFpEF, the squeezing phase may remain relatively strong, but the relaxation phase is impaired. The left ventricle does not expand as easily as it should. More pressure is therefore required to push blood into it.

    This is why HFpEF was once commonly called diastolic heart failure.

    The problem may become more noticeable during exercise or other activity. The body needs more oxygen-rich blood, the heart rate increases, and the ventricle has less time to fill. A stiff heart may not be able to increase its output enough to meet that demand.

    This can contribute to symptoms such as mine:

    • Fatigue
    • Shortness of breath
    • Reduced exercise tolerance
    • Lightheadedness
    • Swelling
    • Rapid weight gain
    • Difficulty breathing while lying flat

    How Does Pressure Build Up?

    When the left ventricle cannot fill easily, pressure begins to rise inside it. That increased pressure can travel backward into the left atrium and then into the blood vessels in the lungs.

    As pressure rises in those vessels, fluid can move out of the bloodstream and into surrounding tissue. In the lungs, this congestion can cause shortness of breath, coughing, reduced oxygen levels, and difficulty breathing while lying down.

    Congestion can also affect the right side of the heart and the veins returning blood from the rest of the body. Fluid may then collect in several places, including:

    • Feet and ankles
    • Lower legs
    • Abdomen
    • Lungs
    • Tissues around internal organs

    Some people first notice tighter shoes, sock marks, swollen ankles, abdominal fullness, or an unexplained increase in weight. Others experience worsening shortness of breath before obvious swelling appears.

    How Is Excess Fluid Removed at Home?

    For many people with heart failure, fluid management begins at home. The exact plan should be developed with a cardiologist or other healthcare professional and may include:

    • Limiting sodium, mine is around 1200mg a day
    • Following a prescribed fluid limit, mine is 1.5 liters a day
    • Taking an oral diuretic, sometimes called a water pill
    • Monitoring weight, blood pressure, symptoms, and swelling daily
    • Contacting the healthcare team when warning signs appear

    Diuretics help the kidneys remove extra sodium and water through urination. This can reduce congestion and make it easier for the heart to work. It also make you having to use the washroom much more frequently.

    A person should not begin taking extra diuretic medication or change the dose unless their clinician has provided specific instructions for doing so. Too much diuretic can cause dehydration, low blood pressure, electrolyte abnormalities, or worsening kidney function. I’ve been in the hospital for this.

    What Happens If Home Treatment Does Not Work?

    If oral medication is not removing enough fluid—or symptoms are becoming severe—hospital treatment may be necessary.

    In the hospital, clinicians can give diuretics intravenously. IV medication enters the bloodstream directly and may work more quickly and reliably than oral medication.

    The healthcare team may also:

    • Measure urine output
    • Monitor daily weight
    • Check kidney function
    • Check sodium, potassium, and other electrolytes
    • Monitor blood pressure and oxygen levels
    • Adjust heart failure medications
    • Treat the condition that triggered the worsening congestion

    In uncommon, severe cases where medications are not effective, a specialized filtration procedure may be considered to remove excess fluid. Most episodes, however, are treated with carefully monitored IV diuretics.

    Why Daily Monitoring Matters

    Fluid can accumulate before it becomes obvious in the feet or ankles. For that reason, daily weight is one of the most useful early-warning tools for someone living with heart failure.

    Weight should generally be checked:

    • Every morning
    • After using the bathroom
    • Before eating or drinking
    • On the same scale
    • In similar clothing

    The American Heart Association advises contacting the healthcare team about a sudden gain of approximately 2–3 pounds in one day or 5 pounds in one week, because it may indicate fluid retention. These are general guidelines; each person should follow the limits established by their own healthcare team. These are the thresholds I have also established with my doctors.

    Blood pressure should also be recorded regularly, but there is no single blood-pressure threshold that applies to everyone with HFpEF. Both high and low blood pressure can create problems. The appropriate range depends on medications, kidney function, symptoms, and other medical conditions.

    A useful daily record can include:

    • Weight
    • Blood pressure
    • Heart rate
    • Swelling in the feet or legs
    • Shortness of breath
    • Ability to lie flat comfortably
    • Fatigue or lightheadedness
    • Diuretic use
    • Sodium and fluid intake, when directed

    The trend often matters more than a single number. A gradual weight increase, falling blood pressure accompanied by dizziness, or steadily worsening breathing deserves attention even when no individual reading appears extreme. I track these daily in an Excel spreadsheet. I will make a post and explain how and what I track.

    A Normal Ejection Fraction Does Not Mean a Normal Heart

    HFpEF can be confusing because the heart may still appear to squeeze normally on an echocardiogram. But the heart must do more than squeeze—it must also relax, fill, and respond when the body requires additional blood flow.

    A stiff ventricle cannot perform those jobs efficiently. Pressure rises, blood backs up, fluid accumulates, and symptoms develop. That is genuine heart failure, even when the ejection fraction remains preserved.

    Living with HFpEF means learning to notice small changes before they become emergencies. Daily monitoring, medication, sodium awareness, and communication with the healthcare team all play important roles in keeping fluid and symptoms under control.

    This article is based on personal experience and general educational information. It is not medical advice. Medication doses, fluid limits, sodium goals, and warning thresholds should be established with a qualified healthcare professional.