Tag: Sleep

  • Daily Journal #18: The Numbers Are Good. My Mind Has Other Ideas.

    Daily Journal #18: The Numbers Are Good. My Mind Has Other Ideas.

    My morning health checks were good again today.

    My weight was right where I wanted it. My glucose was 85. My blood pressure was a little higher than usual, but still acceptable.

    Most importantly, no swelling in my feet.

    After the fluid retention I was dealing with recently, I finally feel like I’m back in a place where I’m comfortable with what I’m seeing.

    That’s the good news.

    Unfortunately, my brain apparently didn’t get the memo.

    Another Night With Almost No Sleep

    I got maybe three hours of sleep last night.

    Again.

    My hip certainly isn’t helping. It’s still hurting quite a bit, and finding a comfortable position has been difficult.

    But I don’t think the hip deserves all the blame this time.

    Anxiety does.

    I have blood work coming up and then an MRI of my kidneys.

    And apparently my brain has decided that 2:00 in the morning is the perfect time to explore every possible outcome.

    Waiting Is Sometimes the Hardest Part

    I’ve already been told there are problems with my right kidney. Then the ultrasound found something that needs a closer look on the other kidney.

    That’s about all I actually know right now.

    But that’s not where my mind stops.

    My mind immediately jumps ahead:

    What if something is seriously wrong with the other kidney?

    What if my kidney function gets worse?

    What if someday I need dialysis?

    Then I start thinking about my other chronic illnesses, my age and whether I’d ever even be a candidate for something like a kidney transplant.

    Before long, I’ve gone from:

    “I have an MRI scheduled.”

    to:

    “I’m going to end up on dialysis.”

    That’s quite a leap.

    And I know that.

    The reality is much simpler.

    I don’t have those answers yet.

    I don’t know what the MRI is going to show. I don’t know what the upcoming blood work will show. And I certainly don’t know that dialysis or a transplant is anywhere in my future.

    Those are fears.

    They aren’t test results.

    Sometimes I need to remind myself of the difference.

    There’s Nothing I Can Do About It Today

    This might be the hardest part for me.

    I like problems I can fix.

    If something breaks around the house, figure out what’s wrong and fix it.

    If there’s a problem with the website, troubleshoot it.

    Health doesn’t always work that way.

    Right now, my job is pretty simple:

    Get the blood work.

    Get the MRI.

    Meet with my doctors.

    Wait for the actual information.

    Worrying about it at three in the morning isn’t going to change what that MRI shows.

    It’s just going to make me exhausted when morning arrives.

    Much easier said than done.

    The Heat Isn’t Helping Either

    It’s still ridiculously hot here in Southwest Florida.

    We’ve had what seems like one heat warning after another lately, so I’m continuing to be careful about how much I do outside.

    I’ve had enough episodes of getting lightheaded and feeling like I might pass out with exertion and heat that I’m not interested in pushing my luck.

    That doesn’t mean I want to sit around all day, though.

    I Still Want to Move

    Even with my hip hurting, I’d like to get some walking in.

    The hospital gave me some exercises to work on before my hip surgery. They’re intentionally pretty mild and don’t require a huge amount of exertion.

    I’d also like to walk a little when I can.

    Nothing heroic.

    I’m certainly not heading outside in a heat warning and trying to set a personal record.

    I just don’t want to completely stop moving because my hip hurts.

    There’s a balance there too.

    Apparently my entire life has become one giant balancing act.

    ❤️ Greg’s Take

    Physically, this morning started pretty well.

    Weight looks good.

    Glucose was 85.

    Blood pressure was acceptable.

    No swelling.

    Those are all wins.

    Mentally?

    That’s a different story.

    I’m tired, my hip hurts, and I’m worried about what we’re going to find with my kidneys.

    I can come up with a hundred terrible possibilities if I give myself enough time.

    But none of them are facts.

    The facts will come from the blood work, the MRI and my doctors.

    Until then, worrying myself into another sleepless night accomplishes absolutely nothing.

    I know that.

    Now I just need to convince my brain.


    Medical Disclaimer

    This daily journal documents my personal experiences living with chronic illness, anxiety about medical testing, pain and ongoing treatment. It is not medical advice. Everyone’s medical situation is different, and decisions about kidney disease, exercise, medications or other treatments should be made with your own healthcare professionals.

  • Daily Journal #17: Good Numbers Don’t Always Mean a Good Day

    Daily Journal #17: Good Numbers Don’t Always Mean a Good Day

    Another rough night of sleep.

    I was up and down most of the night, and according to my Apple Watch, I managed a whopping 3 hours and 21 minutes of sleep.

    That’s not much.

    I’ll probably end up taking a nap sometime today, which unfortunately feeds into the problem. I sleep during the day because I didn’t sleep at night. Then I’m not tired when nighttime comes around.

    Before I know it, I’ve got my days and nights completely screwed up.

    It sucks.

    I’m still trying to figure out how to break that cycle.

    At Least the Morning Numbers Look Good

    The good news is that my morning health checks continue to look good.

    No swelling this morning.

    Nothing showing me that I’m heading back toward the fluid retention I was dealing with earlier.

    That’s reassuring.

    I’m still not drinking as much as I probably should, though.

    After watching my weight climb and my feet swell recently, I’ve definitely become more hesitant about fluids. I’ve talked about that over the last few days, and apparently my brain hasn’t gotten the memo yet that things have stabilized.

    That’s something I need to continue working on.

    At Least I’m Eating

    I did better with food yesterday.

    I had a salad along with some tuna salad.

    We’ve actually started doing something different with the tuna that has turned out really well.

    Instead of buying canned tuna, we’ve been cooking fresh tuna steaks and using those to make tuna salad.

    What a difference.

    It tastes so much better than canned tuna, and depending on what you’re comparing it with, it can also help me avoid some of the sodium that comes with canned and packaged products.

    This might eventually deserve its own recipe on the site.

    One more thing for the list.

    The Hip Is Another Story

    Unfortunately, while the morning numbers are behaving themselves, my hip definitely isn’t.

    This is probably the most pain I’ve been in for quite a while.

    Usually I can find some position where it settles down a little.

    Right now, even sitting still hurts.

    Sleeping has become difficult too, which certainly isn’t helping my already screwed-up sleep schedule.

    The recliner is still the place where I can get the most comfortable, but even that isn’t particularly comfortable right now.

    And mentally, I hate spending most of my day parked in a recliner.

    I want to get up.

    I want to do things.

    I want to work on the website.

    I want to cook.

    I want to move around the house.

    Instead, my hip keeps reminding me that it gets a vote too.

    Apparently, lately it has veto power.

    The Pain-Medication Trade-Off

    I haven’t taken my pain medication in a while.

    There’s a reason for that.

    Constipation.

    That’s one of the side effects I’ve dealt with, and it’s unpleasant enough that I’ve been trying to avoid the medication whenever possible.

    Usually I can tough it out.

    Right now, I’m getting to the point where I may have to reconsider that.

    There’s only so much pain you can tolerate before the benefit of getting some relief starts outweighing the downside.

    If I do need the medication, then I’ll have to deal with the constipation issue separately.

    Another trade-off.

    Seems like chronic illness comes with a lot of those.

    Fix one problem. Create another problem. Manage both. Repeat.

    ❤️ Greg’s Take

    If you only looked at my morning health checks today, you’d probably say:

    Great day.

    No swelling.

    Numbers look good.

    Fluid retention seems to be under control.

    But those numbers don’t show that I slept 3 hours and 21 minutes.

    They don’t show how much my hip hurts.

    They don’t show that sitting still hurts right now.

    And they don’t show how frustrating it is spending so much time in a recliner because it’s one of the few places where I can get even somewhat comfortable.

    That’s something I’ve learned through all of this.

    Good numbers don’t always mean a good day.

    I’m happy with the numbers.

    Believe me, I want them to stay exactly where they are.

    But today?

    I’m tired.

    My hip hurts like hell.

    And there’s a pretty good chance a nap is in my future.

    Hopefully tomorrow is better.


    Medical Disclaimer

    This journal describes my personal experience living with chronic health conditions, pain and prescribed medications. It is not medical advice. Medication decisions, fluid intake and treatment for pain or other symptoms should be discussed with your own healthcare team. Never start, stop or change a prescribed medication based on my experience.

  • Daily Journal #6: Finally Got Some Sleep

    My morning vitals looked okay today. My weight is up about 1.2 pounds over the past two days, but I don’t think I’m retaining extra fluid. My feet aren’t showing any additional swelling or other obvious signs of fluid buildup.

    The best news is that I finally slept. I went to bed around 7:30 last night and got about eight hours of sleep. After several restless nights, I feel a little more refreshed today.

  • Daily Journal #4: No Sleep again

    Weigh-in and morning stats were all good. Fluctuating weight up and down last few days. Nothing to be concerned about. Fell asleep early, around 9pm. Woke up at 1:30am and could not fall back asleep. Watched a lot of TikTok. I’m sure I’ll have a few cat naps today.